Storytelling For Advocacy

Sharing stories is a critical way to advocate for important issues and influence change. When it comes to advocating for disability rights and shaping disability policy, storytelling is a powerful tool. People with disabilities have historically been marginalized and underrepresented in decisions that impact their lives. By sharing personal narratives, people with disabilities and their allies can bring lived experiences into spaces where policies are debated, budgets are allocated, and programs are designed. Stories can move people to action.

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Why Stories Are Transformative

Neurologically, humans are wired for story. Research shows that stories engage not only the language-processing areas of the brain but also the sensory, emotional, and motor regions. This means that when we hear a vivid story—whether it’s about someone navigating a wheelchair ramp or experiencing bias in a job interview—our brains simulate those experiences. In doing so, we don’t just understand the story; we feel it. This process, sometimes called neural coupling, helps release oxytocin, the “empathy hormone,” fostering connection, enhancing memory, and opening us to new perspectives.

Cognitive research also demonstrates that people remember stories far better than isolated data points. We may forget a statistic after a day, but we can recall a memorable story years later. This makes storytelling especially effective in advocacy, where the goal is not just to inform but to persuade and inspire action.

Pairing Stories with Statistics

While stories are memorable, they are sometimes dismissed as “anecdotes” that do not generalize to the larger population. Therefore, describing an experience alongside data is an effective way to draw people into an issue, highlight its broader impact on the community, and build momentum for meaningful change. Stories ignite empathy, while statistics provide evidence that a problem is widespread and systemic. Together, they create a compelling pairing that is difficult to ignore.

Storytelling and Disability Advocacy

Disability advocacy has always relied on dynamic narratives. The disability rights movement of the 1970s gained momentum when people with disabilities shared their stories of exclusion from public spaces, schools, and workplaces. These stories helped secure landmark legislation like the Americans with Disabilities Act (ADA).

Today, the work continues. People with disabilities still face barriers in education, employment, housing, healthcare, and more. Sharing personal stories can highlight these ongoing challenges while also emphasizing resilience, innovation, and contributions to society. When policymakers hear directly from individuals who live with disabilities, abstract policy debates can become real and urgent.

Levels of Advocacy

Advocacy takes place at different levels, each of which plays an important role in creating change. Each level of advocacy is important on its own and all levels together can be an impactful combination.

1. Individual Advocacy
At the individual level, a person speaks up for themselves to ensure their needs are met and their rights are respected. This could mean requesting accommodations in school, seeking fair treatment in the workplace, or navigating healthcare and service systems. Individual advocacy is often the first way people learn to voice their concerns and assert their own rights.

2. Community Advocacy
Community advocacy occurs when people come together to work toward a shared goal. This could involve a group of families advocating for better local services, neighbors organizing around accessibility in their town, or nonprofit organizations uniting to raise awareness about an issue. Working together provides strength of numbers and helps amplify voices and increase visibility. At the same time, it introduces complexity, as people with diverse perspectives must collaborate and find common ground. While this can be challenging, it also makes community advocacy especially persuasive and effective.

3. Legislative Advocacy
Legislative advocacy aims to influence policies and laws that affect large groups of people. This can include educating policymakers, testifying at hearings, meeting with legislators, or mobilizing communities to support or oppose specific legislation. Because laws and policies shape systems, legislative advocacy can have the broadest and most lasting impact.

Many people begin with individual advocacy and learn to speak up for themselves before they move into community advocacy and, eventually, legislative advocacy. Together, these levels create a continuum of action: starting with personal empowerment, growing into collective efforts, and ultimately shaping the systems that affect us all.

The Arc of a Story

A well-told story typically follows an arc which provides a structure that takes the listener or reader on a journey. This arc helps hold attention, build emotional connection, and leave a lasting impression.

1. Setting the Scene
Every story starts by introducing the main character(s), the setting, and the situation. This gives context and helps people feel connection. Who is this about, and why should we care?

2. The Challenge or Problem
Next comes the obstacle, challenge, or problem. This is where the tension builds. Sharing this part draws people in emotionally and creates empathy.

3. The Turning Point
The turning point is the most intense moment of the story. It is the point where something shifts. This might be a breakthrough, a decision, or a key event that changes the direction of the character’s journey.

4. The Outcome
The story then moves toward resolution, where the challenge is addressed. The outcome may not always be a perfect “happy ending,” but it shows growth, change, or insight.

5. The Meaning
The most moving stories end with reflection: why the experience matters and what we can learn from it. This is also where advocates can connect the personal story back to a larger issue and demonstrating why it has broader significance and what action is needed.

Following a story arc is a simple and effective approach to sharing your story to impact action. This framework ensures that a personal narrative is not just a collection of events, but a transformative journey with emotional impact. For advocacy, this structure helps people not only understand an experience but also feel its importance and be inspired to act.

Storytelling is a strategy for change. For people with disabilities and their allies, stories open doors that statistics alone cannot. They humanize issues, dismantle stigma, and mobilize action. When we share our stories, we create connections that transform understanding into meaningful change, proving that every voice has the power to shape a more inclusive world.

This is a content was posted by Forbes EQ, contributed by Our Place.

Dr. Katie Arnold

Executive Director of Our Place of New Trier
Katie Arnold is a strong disability advocate with a sense of social justice. As Executive Director of Our Place from 2024, Katie brings more than 20 years of experience in the disability field and over 10 years of experience building and growing a national disability nonprofit organization. Prior to her leadership of Our Place, Katie was a faculty member in the Department of Disability and Human Development at the University of Illinois Chicago (UIC).  At UIC Katie also served as the Director of Stakeholder Engagement for the Institute on Disability and Human Development, taught graduate and undergraduate courses, and conducted inclusive research on family support, future planning, and self-determination of people with IDD.  A distinguished expert in her field, she is a highly sought-after speaker who has presented at more than 100 national conferences.  She has also authored numerous publications, including 29 articles in peer-reviewed journals.  In addition to her work at UIC, Katie served from 2012-22 as the founding Executive Director of the Sibling Leadership Network (SLN), a national nonprofit that support siblings of people with disabilities across the life course. Grounding her work in her previous experience living in L'Arche, a community based on mutual relationships between people with and without disabilities, Katie truly immerses herself in the disability community to listen deeply, learn from others, and guide her work. Katie has a long commitment to community education and information dissemination, and she is a bridge builder between academia and the community. Growing up with her sister with intellectual disabilities shaped Katie’s worldview and influenced her career path. Katie lives in Oak Park with her husband, Gary, who is a disability advocate, and their son with developmental disabilities.

https://www.ourplaceofnewtrier.org/katie-arnold
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Siblings Of People With Disabilities: Supporting The Next Generation Of Supporters